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Emerging

Development of oral health resources and a mobile app for caregivers and autistic children through consensus building.

Autism : the international journal of research and practice2024

Tan Bing Liang, Nair Rahul, Duggal Mandeep Singh, Aishworiya Ramkumar, Tong Huei Jinn

What this study means for families

Researchers created special dental health information and a phone app to help parents of autistic children. The app includes stories about going to the dentist (created with help from an autistic child), tools to make your own visual schedules, and ways for dentists to send messages to parents. Both experts and parents who tested the app liked it and found it helpful.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Research summary

This study describes the development of oral health resources and a mobile app designed specifically for caregivers and autistic children. The researchers created educational materials addressing common knowledge gaps about oral homecare and dental visits. An autistic child contributed to developing two social stories demonstrating dental visits. The mobile app delivers these resources and includes features for creating customized social stories, visual schedules, and communication between dentists and parents.

Both the information materials and app underwent review by experts and parents, with anonymous testing by parent users. The feedback was positive from both expert reviewers and parent testers.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Key findings

  • 1

    Educational oral health resources and mobile app were successfully developed through consensus building with experts and parents

    Confidence: The study reports successful development but lacks detailed outcome measuresRelevance: Addresses identified knowledge gaps in oral health care for autistic children
  • 2

    An autistic child contributed to developing two social stories about dental visits

    Confidence: Clearly stated in abstractRelevance: Authentic representation may improve acceptance and effectiveness of social stories
  • 3

    The developed materials and app received positive feedback from both experts and parents

    Confidence: General positive reception reported but specific feedback details not providedRelevance: Suggests potential acceptability and usability for target users

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Clinical implications

The study demonstrates feasibility of developing autism-specific oral health resources through collaborative design. The positive reception suggests potential for improving oral health knowledge and dental visit experiences. However, effectiveness studies are needed to determine clinical impact on oral health outcomes and dental visit success rates.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Limitations

This appears to be a development and feasibility study rather than an effectiveness trial. Sample sizes for expert and parent reviewers are not reported. No quantitative outcomes or long-term follow-up data are provided. The abstract lacks details about specific feedback or validation measures used.

Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.

Original abstract

Caregivers of autistic children often lack knowledge regarding oral homecare and when and where to see the dentist. To address this need, we developed a series of information on oral health. An autistic child assisted in developing two social stories to showcase a dental visit. A mobile app was developed to deliver the above mentioned.

Other features include creation of customised social stories and visual schedule and an inbox to allow dentists to send messages to parents. The developed information and social stories were reviewed by experts and parents. The app also underwent anonymous and independent testing by parents. Overall the information and app were well received by the experts and parents.

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Evidence Grade

Emerging

emerging

Grade assigned by AutismInsights based on study type and published abstract.

Study Details

Journal
Autism : the international journal of research and practice
Year
2024
PMID
37537880
DOI
10.1177/13623613231188768

MeSH Terms

ChildHumansOral HealthMobile ApplicationsAutistic DisorderConsensusCaregiversAutism Spectrum Disorder