How the Occupational Competence and Quality of Life in Parents of Children with Autism Spectrum Disorder Changed During the COVID-19 Pandemic: A Mixed Design Study.
Zengin Yazıcı Gülşah, Kaya Evsen Suzan, Demir Aleyna, Kayıhan Hülya
What this study means for families
This study looked at how COVID-19 affected parents of autistic children compared to other parents. Researchers found that parents of autistic children struggled more during the pandemic, especially with work, social activities, looking after themselves, and having time for hobbies or relaxation. The study included over 500 families and used surveys and interviews to understand their experiences.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Research summary
This mixed-methods study examined how the COVID-19 pandemic affected occupational competence and quality of life in parents of autistic children compared to parents of neurotypical children. The research involved 220 parents of autistic children and 300 control parents, using validated assessments (Occupational Self-Assessment, SF-36) and qualitative interviews. Findings revealed significant differences between groups, with parents of autistic children experiencing greater impacts on their professional and social roles, along with reduced participation in self-care, productivity, and recreational activities during the pandemic. The study provides insights into pandemic-specific challenges faced by families affected by autism.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Key findings
- 1
Significant differences in occupational competence between parents of autistic children and parents of neurotypical children during COVID-19
Confidence: moderateRelevance: Identifies specific areas where parents of autistic children may need additional support during crisis periods - 2
Quality of life differed significantly between parent groups during the pandemic
Confidence: moderateRelevance: Highlights the disproportionate impact of pandemic disruptions on families with autism - 3
Parents of autistic children experienced reductions in self-care, productivity, and recreational activities
Confidence: moderateRelevance: Suggests need for targeted interventions to support parental wellbeing and role balance
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Clinical implications
Results suggest parents of autistic children require enhanced support during crisis periods to maintain occupational balance and quality of life. Occupational therapy interventions focusing on role management, self-care strategies, and coping mechanisms may be particularly beneficial for this population during times of increased stress and disruption.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Limitations
The abstract lacks detail about study methodology, specific outcome measures, effect sizes, and potential confounding variables. Sample characteristics and recruitment methods are not described. The year 2026 suggests this may be projected or preliminary research.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Original abstract
This study aimed to evaluate the impact of the pandemic on the occupational competence and quality of life of parents of children with autism using a mixed-methods design. It compared 220 parents of children with autism to 300 parents of neurotypical children, utilizing the Occupational Self-Assessment, Short Form 36 Health Survey, and qualitative interviews for data collection. Quantitative results revealed significant differences in occupational competence and quality of life between the two groups. Qualitative interviews underscored changes in parents' professional and social roles, along with reductions in self-care, productivity, and recreational activities, particularly affecting parents of children with autism.
Evidence Grade
limited
Grade assigned by AutismInsights based on study type and published abstract.
Study Details
- Journal
- Occupational therapy in health care
- Year
- 2026
- PMID
- 39544001
- DOI
- 10.1080/07380577.2024.2426648
MeSH Terms