Operationalizing the ICF Core Sets for Autism and ADHD: A Multiple-Methods Feasibility Study.
Alehagen Lovisa, Hasslinger John, Wessman Elina, Black Melissa, Lundin Remnélius Karl, Helander Johan, Zander Eric, Bölte Sven
What this study means for families
Researchers developed an online tool to assess how autism and ADHD affect daily functioning, based on World Health Organization standards. They tested it with 678 users including people with autism/ADHD, families, and professionals. The platform was found to be practical and easy to use, though some improvements were suggested. After making changes based on user feedback, the tool is now ready for wider use in research and clinical practice.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Research summary
This multiple-methods feasibility study evaluated the operationalization and implementation of ICF Core Sets for autism and ADHD on an online platform. The research involved an iterative development process, collecting 678 assessments from individuals with autism/ADHD, relatives, general population participants, and professionals. Feedback was gathered through platform usage, interviews, and focus groups. Qualitative content analysis and quantitative descriptive techniques were employed.
Results indicated the ICF CoreSets platform is feasible and user-friendly for functional assessment, though areas for improvement were identified. Following user-indicated revisions, the platform appears adequate for research and practice applications and is ready for psychometric standardization.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Key findings
- 1
ICF CoreSets platform demonstrated feasibility and user-friendliness for functional assessment
Confidence: moderateRelevance: Provides standardized assessment tool for autism and ADHD functioning - 2
678 assessments completed across diverse user groups including individuals with autism/ADHD, relatives, and professionals
Confidence: strongRelevance: Demonstrates broad stakeholder engagement in platform validation - 3
Platform ready for psychometric standardization following user-indicated revisions
Confidence: moderateRelevance: Enables progression toward validated clinical assessment tool
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Clinical implications
The ICF CoreSets platform offers a standardized approach to assess functioning in autism and ADHD. Its demonstrated feasibility suggests potential utility for clinicians in comprehensive assessment. However, psychometric validation is still required before widespread clinical implementation. The platform may enhance consistency in functional assessment across research and clinical settings.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Limitations
Study methodology not clearly specified in abstract. No specific sample size reported for different user groups. Specific areas for improvement not detailed. Psychometric properties not yet established. Limited information on validation criteria or statistical outcomes of feasibility assessment.
Summary by AutismInsights from published abstract. This is not a substitute for reading the original paper.
Original abstract
The International Classification of Functioning, Disability and Health (ICF) is the World Health Organization's (WHO) standard for assessing individual functioning. Over the last decade, the ICF has been made more accessible for autism and ADHD through the development and validation of tailored shorter ICF versions for these diagnoses, ICF Core Sets. To further enhance their applicability in research and practice, these Core Sets have been operationalized and implemented on an online platform, the ICF CoreSets platform. Here, we describe the iterative development process of the CoreSets platform.
This multiple-methods study examines user feedback on the operationalization of the Core Sets and the feasibility of the CoreSets platform as a functional assessment for autism and ADHD. We collected a total of 678 assessments from the CoreSets platform. Individuals diagnosed with autism and/or ADHD, their relatives, participants from the general population, and professionals completed and provided feedback on the usability of the CoreSets platform. Qualitative feedback via interviews and focus groups were also collected.
Qualitative data were analysed via content analysis, while quantitative data were examined using univariate and descriptive techniques. Findings show that the ICF CoreSets platform is feasible and user-friendly, but areas for improvement were also indicated, leading to additional refinement of the operationalization and platform. The operationalization of the ICF Core Sets and their implementation in the CoreSets platform appears adequate for use in research and practice, particularly after revisions indicated by future users, and is now ready for psychometric standardization.
Evidence Grade
emerging
Grade assigned by AutismInsights based on study type and published abstract.
Study Details
- Journal
- Journal of autism and developmental disorders
- Year
- 2026
- PMID
- 39883295
- DOI
- 10.1007/s10803-024-06717-4
MeSH Terms